The CML Advocates Network, hosted by the Leukemia Patient Advocates Foundation, would like to thank its partners for their friendship and mutual support!
The CML Advocates Network collaborates very closely with the International CML Foundation. The iCMLf is a charitable foundation established by a group of hematologists with a strong interest in Chronic Myeloid Leukemia. The mission of the iCMLf is to improve the outcomes for patients with CML globally. It aims to foster and coordinate global clinical and research collaborations and to improve clinical practice and disease monitoring in CML. Scientific advisors and national representatives spanning over 30 countries provide guidance and advice to further the aims of the iCMLf. Read more here.
The CML Advocates Network is a founding member of Rare Cancers Europe. Rare Cancers Europe (RCE) has been established as a partnership of all stakeholders that work together to place the issue of rare cancers firmly on the policy agenda, to identify and promote appropriate solutions and to exchange best practice.
It campaigns to foster the creation of reference networks for the treatment of patients with rare cancers, to spread knowledge and good practice guidelines on rare cancers, and to address obstacles to patients’ access to appropriate therapies. Read more here.
The CML Advocates Network cooperates with Patient Power. Patient Power brings in-depth information to patients with cancer and chronic illness. Audio and video interviews, with transcripts, help patients make informed decisions in partnership with their medical team. Founded by patient advocate, medical journalist, author and cancer survivor Andrew Schorr, Patient Power goes far beyond basic health information. Patient-centric programs focus on delivering the most credible, authoritative and up-to-date health information. More than 2,000 on-demand programs feature leading medical experts, inspiring patients, unforgettable stories and actionable medical guidance on serious health concerns. Connect with Patient Power on Facebook, YouTube, Twitter and Vimeo, and view the entire library of audio and video interviews on CML at www.PatientPower.info.
The Leukemia Patient Advocates Foundation / CML Advocates Network is a member or EURORDIS. EURORDIS is a non-governmental patient-driven alliance of patient organisations representing more than 600 rare disease patient organisations in almost 60 countries. Read more here.