Welcome to the CML Advocates Network!
We are a worldwide network of non-profit organisations supporting patients with Chronic Myeloid Leukemia (CML) and their relatives. We do this by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups. The network is solely run by volunteers who are CML patients themselves.
This is what you can do here: Find CML patient groups in our worldwide directory of CML patient groups. Find out more about the CML Advocates Network. See our directory of web links. If you are representing a CML patient group, please log in to access our Wiki, our discussion forum, our photo gallery or our download area -- or please register if you are not yet a member.
9/22 represents the genetic change of Chromosomes 9 and 22 that causes Chronic Myeloid Leukemia (CML). This September 22 (9/22), patient organisations across the world will unite to raise awareness of the needs of patients living with CML.
On 9-12 June 2011, the European Hematology Association (EHA) held its 16th Annual Congress in London, featuring newest results from clinical trials and biology research in hematology. Several patient advocates attended the meeting. This year brought great news to the CML patient community - not only from a medical perspective. Jana Pelouchová and Jan Geissler chaired a very successful "Patient Advocates Session" on Adherence within scientific program of the congress, which featured Giora Sharf's presentation of brand-new data of the CML Advocates Network's pilot survey on adherence. In addition, patient advocates from 8 pan-European hematology patient organisations, including the CML Advocates Network, had a very fruitful meeting with EHA's executive board, potentially laying the base for a fruitful cooperation in upcoming years.
On 13-15 May 2011, "New Horizons in treating cancer" was held in Amsterdam. Sponsored by Novartis, the conference provided patient advocate leaders with an opportunity for 3 days of learning, companionship and the chance to share experiences across borders.The conference welcomed 137 patient representatives (96 CML; 41 GIST) from 48 countries in Europe, North America, Asia, Australia, Africa, Middle East and Latin America.
On 18-20 March 2011, patient representatives from 16 countries met in Singapore for the conference "Rising Sun 2011", the second annual meeting for CML advocates from the Asia-Pacific region. This event was truly a "dream come true" for Asian CML advocates, giving them an opportunity to meet peers, develop tight connections and learn from each other. With this year's representatives from China, Hong Kong, Korea, India, Indonesia, Malaysia, Philippines, Singapore, Taiwan, Thailand and Vietnam, Rising Sun had become a key meeting for CML patient groups. Speakers from these countries were joined by speakers from Australia, New Zealand, Germany, Switzerland and the USA.
The "CML Advocates Network", the international platform of patient groups supporting patients and relatives suffering from Chronic Myeloid Leukaemia, and the International CML Foundation join forces to support young patients affected by that rare form of leukaemia, as well as physicians and researchers. The project, launched on International Childhood Cancer Day on 15 February 2011, will encompass a range of activities to support collaboration and sharing of experience of parents of young patients as well as physicians treating children with this ultra-rare condition.
The "CML Advocates Network", the international platform of 54 patient groups supporting patients and relatives suffering from "Chronic Myeloid Leukaemia" (CML) across all continents, has relaunched its web community and provides new social media functionalities.
- World Cancer Day 2011, Maximized: The Max Foundation submits 13.000 signatures to World Cancer Declaration
- "CML Advocates Network" now connects 59 leukaemia patient groups in 48 countries
- ASH 2010 Report: A new era in first line CML treatment coming up?
- iCMLf-ESH Meeting in Washington DC: A patient's perspective