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CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

Germany: German Leukemia and Lymhoma Aid (DLH, Deutsche Leukämie- und Lymphom-Hilfe e.V.)

CONTACT INFORMATION:

Deutsche Leukaemie- und Lymphom-Hilfe e.V.
Thomas-Mann-Str. 40
D-53111 Bonn
Germany

Telephone: +49-228-33 88 9 200
Facsimile: +49-228-33 88 9 222
Email:
Website: www.leukaemie-hilfe.de

KEY CONTACTS:

Ralf Rambach, Chairman
Anita Waldmann, honorary chair
Ulrike Holtkamp, Patients’ advocate

ORGANIZATIONAL OBJECTIVES:

Help, Information, Advocacy

BRIEF DESCRIPTION OF ORGANIZATION:

Umbrella organization of German-speaking support groups for adult patients with leukemia, lymphoma, myeloma and other rare diseases of the blood and bone marrow

AUDIENCE/CONSTITUENCY:

Adult patients with leukemia, lymphoma, myeloma and other rare diseases of the blood and bone marrow, family members, friends, support group leaders, journalists, media, physicians

NUMBER OF MEMBERS:

83 self support groups, 3 pharmaceutical companies, 2 hospitals, about 200 passive members

COUNTRIES WITH A SIGNIFICANT MEMBERSHIP BASE:

Germany, Switzerland, Austria, Belgium

WAYS OF COMMUNICATING WITH CONSTITUENCY:

DLH-INFO (printed magazine, 3 times per year)
Email-Newsletter for member organizations
Training Seminars for support group leaders, Annual General Meeting, Educational Seminars, Congresses, Website

KEY PROGRAMS:

Brochures, Educational Seminars, Federal Patients’ Congresses, Patient Hotline, Support of support groups, Advocacy, PR

 
   
 

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