Russia: Sodeystvie (Assistance)

CONTACT INFORMATION

All-Russian public organization of disabled people
RUSSIAN SOCIETY OF ONCOHEMATOLOGY
SODEYSTVIE
Khoroshevskoe highway,35/2,
Moscow
Russian Federation, 123007

Telephone of our organization is +7(499)195-30-04, +7(499)195-96-28

Official E-Mail address:
Website address: http://www.sodeystvie-cml.ru/

KEY CONTACT

Lilia Matveeva (President of All-Russian public organization of disabled people
RUSSIAN SOCIETY OF ONCOHEMATOLOGY
SODEYSTVIE
Stanislav Kulikov (vice-president in the Volga Federal District)

BRIEF DESCRIPTION

The national association of patients with CML was founded in Russia in February, 2007. The delegates from regions of the Russian Federation adopted a decision to create the national association "Sodeystvie" on forum in Moscow. Under aegis of SODEYSTVIE were united more than 6 thousand patients with CML

ORGANIZATIONAL OBJECTIVES

The purpose of our organization is to inform patients groups all over Russia how to have influence on RF authorities in order to get access to medication. Our organizationon also helps patients to take PCR and cytogenetic tests in Central Clinics of Moscow and other big cities.
Key initiatives and activities of your organisation Promoting improvement of preventive maintenance, diagnostics and treatment of CML leucemia - directed on informing of the population on modern methods and standards of treatment oncological diseases. We carry on active dialogue with representatives of executive and legislative powers in different levels of the Russian Federation/ The result of a such interaction became the creation of the federal Program.

NUMBER OF MEMBERS

More than 6 thousand members of organization in Russian Federation.

ADDITIONAL INFORMATION

Now we solve the question on maintenance with preparations of the second line. For today SODEYSTVIE has branches in 59 regions of Russian Federation. Schools for patients with CML, the published brochures and the diaries for CML patients are on a regular basis spent. Also our RUSSIAN SOCIETY OF ONCOHEMATOLOGY
SODEYSTVIE organizes All Russian Conferences of CML patients every year.