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CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

If your group is not listed here, please register. If details have changed, please contact us.

Poland: The Nationwide Association for CML Patients Aid

(Ogólnokrajowe Stowarzyszenie Pomocy Chorym na Przewlekla Bialaczke Szpikowa)

CONTACT INFORMATION:

Mailing/Postal Address:
ul. Bychowska 56
04-536 Warszawa
Poland

Email:
Website: http://www.spbs.com.pl/

KEY CONTACT:

Jacek Gugulski
President
Telephone: +48 504 153 136
EMail:

ORGANIZATIONAL OBJECTIVES:

access to new therapies, psychological support for the patients, free doctors’ consultations, help with access to valuable information

BRIEF DESCRIPTION OF ORGANIZATION:

Nationwide Association of CML Patients is located in Warsaw. We also have regional organizations in: Kraków, Lublin, Kielce, Łódź, Gdańsk, Szczecin, Wrocław, Poznań, Katowice, Białystok and Opole. We co-operate with many institutions – associations, companies, hospitals, authorities – all in order to make the situation of the patients better.

AUDIENCE/CONSTITUENCY:

patients, families

NUMBER OF MEMBERS:

300 all over Poland

COUNTRIES IN WHICH ORGANIZATION HAS A SIGNIFICANT MEMBERSHIP BASE:

not applicable

WAYS OF COMMUNICATING WITH CONSTITUENCY:

publications – newsletter, telephone, fax, www, e-mail

KEY PROGRAMS:

  • trainings for the patients
  • program the aim of which are contacts with decision makers in order to improve patients’ situation

 
   
 

Please donate!

Please donate!