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CML Support Groups: Members of the CML Advocates Network

The CML Advocates Network connects patient organisations supporting patients and families affected with Chronic Myeloid Leukemia (CML)

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Kazakhstan: Association of patients with hemoblastoses

CONTACT INFORMATION

Head office in Almaty and five branches in five cities across the country

Postal address - Abylay Khan str. 125, Almaty, Kazakhstan, 050000

Official E-Mail: and

Website address: http://www.cml-stop.kz

Key contact

 

Mizinova Lyubov, President

BRIEF DESCRIPTION

The Association was founded in 2004 by doctors - hematologists and patients with chronic myeloid leukemia (CML) in Almaty. Due to numerous statements from various regions of Kazakhstan with a request to join members of the Association, in April 2010 was received the status of the Republican public association.

 

Organisational objectives

Organisation of events for the patients with chronic myeloid leukemia with the latest drugs, assistance in the development and introduction of modern health care systems, new forms and methods of rehabilitation, as well as high-performance products for the treatment of patients with CML. Providing legal and psychological support to members of the association.

Number of members

500 (January 2012)


Jeff Horn Community Builder Avatar   16.07.2012 (18:13:49)
Stem Cell donor search for CML patient Yes No I am a nurse caring for a lady from Kazakhstan who now lives in Scotland, UK.

She has CML which was diagnosed in Almaty in 2004, but unfortunately she has failed to respond to Imatinib and also now nilotinib and we hope to perform a stem cell transplant.

She has one brother who currently lives in Almaty and I am trying to find out if it is possible to perform HLA Tissue Typing blood sampling in Almaty to identify if he would be a suitable stem cell donor.

I hoped that you might have a contacct name for someone in Almaty who may be able to help with this sampling or know of an intstitution I can contact directly.

Many thanks.

Mr Jeff Horn
Haematology and Bone Marrow Transplant nurse
Aberdeen Royal Infirmary
Aberdeen
Scotland, United Kingdon
 
 
   
 

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