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Calling CML Patient Advocate Leaders to apply for the 3rd EUPATI Patient Expert Training Course

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THE EUPATI PATIENT EXPERT TRAINING COURSE IS TAILORED TO PATIENT ADVOCATES AND TURNS THEM INTO PATIENT EXPERTS IN MEDICINES RESEARCH AND DEVELOPMENT.

DEADLINE FOR APPLICATIONS IS 31 MARCH 2017

 

The EUPATI Patient Expert Training Course in Medicines Research & Development is an exciting and unique opportunity, offering patient advocates expert-level training that is specifically tailored for them. 

This 14-month tailor-made course, based on e-learning with additional two face-to-face training weeks, gives you the tools as CML patient advocate leaders to be able to contribute to be part of the research and development process and all related regulatory processes. It helps to understand all processes of pre-clinical and clinical research, drug safety, benefit/risk assessment and health technology assessment at an expert level.

IMG 0348So far, three CML advocates members have participated in the EUPATI course: Conny Borowczak, Aimo Stromberg and Sarunas Narbutas. Read about Conny's experience by clicking on "Read more", and contact them if you have questions.

We encourage European patient advocates (from the wider European region as defined by WHO) to apply before the deadline of 31st March at https://www.eupati.eu/third-cycle-apply-now/

 

 Click on read more for Testimonial.

Cornelia Borowczak, CML advocate

My Experience:
Cornelia Borowczak 

As most of you know my son was diagnosed with CML aged 12. From the first day of our new life was out of balance I wanted to know all about this malignant blood cancer and all about available therapy options. I didn’t understand why there are several TKI’s but only one is approved for treatment in children. I heard of EUPATI and the possibility to become a trainee of a course “Medical Research and Development”. This was exactly what I looked for and therefore I applied.

The EUPATI Patient Expert Training Course is an outstanding tool to acquire well-founded expertise for all further discussions with patients and particularly physicians and pharma’s on eye-to-eye level. All learning matters are provided on an online platform in well coherent lessons. Especially the short and clear formulated contents helped me to use my bare time to learn effectively.

Anybody of our CML advocate network should use such a magnificent tool to improve knowledge for further projects and our daily advocate work. During two face-to-face meetings you will get the possibility to meet advocates from other diseases and learn about their work. I was impressed to hear their stories, projects and results of their engaged work. Knowledge is a prerequisite for change insufficient options for patients – to provide best treatment and medications for all CML patients in our community.

I want advise all of you to become an EUPATI trainee. Take the opportunity for “Learn, Share and Grow”. Don’t be discouraged by the duration of more than one year, the wide subject matter or knowledge checks. As I am a very busy self-employed with a family, a house and a great garden, cat and dog and a child with chronical disease I don’t regret my participation. Yes, I’m really proud to be a EUPATI Patient Expert now!

 

 




 
   
 

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VIDEO: Jan Geissler of @cmlnet on involving #patients in clinical trial design: ow.ly/mYBZ30dOsig #EHA17

Retweeted Sunday, 23 July 2017

patientpower_es
Toni, paciente de LMC: "No estamos educados como pacientes" ow.ly/YZZd30dLWey #ffpaciente #leucemia pic.twitter.com/pWZhdNGfrc

Retweeted Friday, 21 July 2017

cmlnet
@Aelemic @jangeissler Thank you so much for your work!Gracias por vuestro trabajo! #generics #TKI #cml #patientstwitter.com/i/web/status/8…

Friday, 21 July 2017 in reply to Aelemic