 | 45% | Unknown (10594) |
 | 7% | France (1561) |
 | 6% | Russian Federation (1466) |
 | 6% | Germany (1396) |
 | 6% | Ukraine (1375) |
 | 4% | United Kingdom (1038) |
 | 4% | Netherlands (871) |
 | 3% | Italy (654) |
 | 2% | India (464) |
 | 1% | Switzerland (307) |
 | 1% | Poland (265) |
 | 1% | China (238) |
 | <1% | Spain (223) |
 | <1% | Brazil (189) |
 | <1% | Australia (139) |
 | <1% | Canada (113) |
 | <1% | Macedonia, Former Yugoslav Republic (111) |
 | <1% | Japan (103) |
 | <1% | Serbia (103) |
 | <1% | Turkey (95) |
Welcome to the CML Advocates Network!
We are a worldwide network of non-profit organisations supporting patients with Chronic Myeloid Leukemia (CML) and their relatives. We do this by sharing knowledge and best practice, supporting campaigns, and educating advocates how to build and grow patient groups. The network is solely run by volunteers who are CML patients themselves.
This is what you can do here: Find CML patient groups in our worldwide directory of CML patient groups. Find out more about the CML Advocates Network. See our directory of web links. If you are representing a CML patient group, please log in to access our Wiki, our discussion forum, our photo gallery or our download area -- or please register if you are not yet a member.
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While treatment guidelines and recommendations are recognised as being the standard of care by haematologists, they can be difficult for patients to understand. To improve the information available to patients, an international CML workgroup of patient organisations and experts have developed a patient-friendly summary of recommendations for CML management. Thanks to a great community effort, the summary is now available in seven languages: English, French, Spanish, German, Italian, Macedonian, Polish and Serbian! The summary aims to help patients to better understand CML management and communicate with their doctors regarding treatment and diagnostics. The original recommendations for physicians were published by CML experts on behalf of the European LeukemiaNet (ELN) in the Journal of Clinical Oncology in 2009. Read the summary here.
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While treatment guidelines and recommendations are recognised as being the standard of care by haematologists, they can be difficult for patients to understand. To improve the information available to patients, an international CML workgroup of patient organisations and experts have developed a patient-friendly summary of recommendations for CML management. Thanks to a great community effort, the summary is now available in seven languages: English, French, Spanish, German, Italian, Macedonian and Polish! The summary aims to help patients to better understand CML management and communicate with their doctors regarding treatment and diagnostics. The original recommendations for physicians were published by CML experts on behalf of the European LeukemiaNet (ELN) in the Journal of Clinical Oncology in 2009. See the summary here.
 The "CML Advocates Network", an international platform for patient groups supporting patients and relatives suffering from "Chronic Myeloid Leukaemia" (CML) now connects 64 organisations from 51 countries across all continents. This worldwide network offers support by sharing of best practice, information and advice for CML patient representatives. We are delighted to welcome our newest member "Association of patients with hemoblastoses" from Kazakhstan! |
The "CML Horizons 2012" conference, held in Munich on 11-13 May 2012, was a great success. 86 representatives of leukemia patient organisations from from 48 countries participated in this global advocacy summit. It helped CML patient advocates to identify opportunities in patient advocacy and patient support, hear about newest advances in CML management, share ideas and best practices, and start building alliances across borders. CML Horizons is an independent, community-run and multi-sponsored conference, run by the CML Advocates Network and the Leukemia Patient Advocates Foundation. It has evolved from the "New Horizons" conferences 2002-2011. 
The Chronic Myeloid Leukaemia Learning Programme, devised by the European Group for Blood and Marrow Transplantation (EBMT) Nurses Group, represents the first specialist Chronic Myeloid Leukaemia (CML) education programme that has been developed in Europe especially for nurses. The programme, which will be launched during the opening ceremony of the annual meeting of the European Group for Blood and Marrow Transplantation (EBMT), to be held in Geneva, Switzerland, 1-4 April, 2012, has been designed to help nurses and other allied health care professionals through the rapidly evolving CML treatment landscape and enable them to deliver optimal care to patients.